Whispers of Hope – Karen Lynn-Chlup

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Allergy Awareness

Allergy Awareness

For years, every time I ate something with wheat, dairy, eggs, yeast, or gluten, my body would violently react.  I would get black eyes, my stomach would blow up, and my nose would get terribly stuffy!  I would feel miserable after suffering the severe consequence of a compromised immune system for decades.

Somehow I knew instinctively that I was different and something was terribly wrong.  The human body was made to enjoy foods- not battle them-

But no one would believe me.  Family members thought I was crazy!  I even went to a young doctor in his thirties, who told me my body was suppose to blow up-  That made absolutely no sense to me.  I knew that, that was wrong advice- perhaps my Cerebral Palsy could be part of the cause. Perhaps it had something to do with the DPT shot given me at infantcy.  I did not know for sure- or to what extent.  But I was not going to give up!  I kept searching for answers.

Through reading, I saw in black and white where it stated that sometimes the digestive system and swallowing could be affected in people with C.P. (Cerebral Palsy.)  What about those who did not have Cerebral Palsy and those who have Celiac Disease?

Well, for the last 2 years, I have been on the road to recovery.  I have eliminated all the foods I am allergic to, go for acupuncture, and, I  work one-on-one with a naturopathic doctor that truly understands and cares-   I have been searching out, baking, and trying new recipes.

Because I was asked to write a blog for all of you, I have agreed.  Know that you are not alone anymore!  You are in good company and there is someone else out there that truly understands what you are going through.

Stay tune.  There’s more to come…

Tis the Season

When I think of Christmas and Hanukah, I think of giving.  I think of joyful memories, and I think of good times spent with the people I care for and about.  I think about looking outward.  I think about making other peoples face light up.

What do you do?  What are your thoughts?  Do you think of store bought gifts, or gifts of the heart?  Do you give because someone has touched you?  Or, do you give to see how many presents you can stack up and get?

Year after year, generation after generation the season has changed. We see people giving to get.

How do you give?

How have you brought joy to a person heart this season?

How have you made a difference?

And, how did you pass it forward so that person will never forget your kindness, that day, or what you did for them?

It Never Stops

In all the 60 years I have been alive, we still do not know how to treat the disabled or challenged person with dignity and respect.  I just had a birthday seven days ago, and it has really gotten my wheels spinning.  In all these years, with all the advances in technology, human attitudes have not advances.  We remain aloof, callous, cold, and even more judgmental of each other than ever before.   Every other grouping of disabilities is far better understood than people with Cerebral Palsy.

We are trapped in a world of worthless, valueless, and second-rated ideas.   You would think by now, with all the human Civil Rights cases and laws on the books, things would be different. But they are not-  People in charge smile and use all the right words, in all the right company, although, for many, they retain dangerous ideas and concepts about what must be done to “help” us .  This idea that “we should” want meaningful employment, a person we could call our soul mate, a place that we could call our home, and the opportunity to recreate is for many of them terrifying.

To be amongst people, working, playing and living healthy, happy, meaningful lives does not exist!  People are down right threaten of those like myself who are self-directed.  They can’t stand me because I threaten their world and their ability to perform and exercise power in any way, shape or form.   They are taken-a-back by my determination.   So they begin to resent, bully, judge, and retaliate against us.  Why, tell me why does this have to be?  We are not doing or bringing harm to other people-  All we want to do is live our lives joyously and peacefully in the way we choose.

Their is absolutely no reason at all on earth, to take matters into ones hand to ruin our lives. What reason do people have to stifle our needs, our wants, our desires, and our aspirations’.  The only reason I can come up with after a life time of this kind of bullying and trauma is to uphold the image of our community as cute and helpless.  They can’t stand us having our own power.  They can’t stand seeing us succeed and be successful. And, they can’t stand that we are accomplishing and trying to accomplish anything without their help and guidance.

Just like all of you, I intend to continue to not only accomplish the accomplishable, but I intend to continue to make this a kinder and gentle world by bringing this to the forefront.

The Distinguished Panel

On Monday, November 22nd, I was invited to be part of a respected body of people who talked For/With/ And About disabilities.  It was a well received event. Hosted by the IWOSC.org( Independent Writers Of Southern California.)   Where one of the first questions asked, of us was…  what made you decide to become a writers?  And when did you know?  Each of the four individuals in order asked, answered, including myself.   Each person responded.  And each, because their disability was/is  different, or, was writing about a disability or personal family member having one, each answered in accord.

Personally, to be ask to be on a panel such as this; so quickly, was quiet exciting-  it was quiet stimulating, and quiet awe inspiring!  The topic, shushed the audience in amazement.  As “we”  the panel, were not able to talk about why we inspire others.

I believe and accept that the inspiration is in the act of doing, conquering, and  achieving.  It is in the believing in oneself when others don’t!  But most important, it is in the use of the written word.  It is in the how we express ourselves, our visions,  our dreams , and, our insights as writers.

 

 

IWOSC panel on disabilities

Caring in a World That Does Not Seem to Exist Anymore

“Healing should be a loving human interchange, not a business transaction.”  Dr. Hunter Patch Adams said in one of his interviews.  Why is that?  Why have we taken this stance?  And why have we become a society who doesn’t care anymore?   Have you ever thought about this, or if you have participated in this kind of destructive thinking, why is that so?  There have always been ruins and catastrophes throughout our centuries, but never to the extent and scale that we see it today.

We have become a society wrapped up in greed, materialism, and self-indulgence. We do not know how to give of our selves or be selfless.  We do not know the first thing about passing it forward, or helping those who need it.   We have lost the meaning of warmth and benevolence.  And, we have become cold, callous, and uncaring.   We have mutilated our dignity, and, we have lost our focus.

What has happened?  Why have we forgotten this?  And, what is it in our innate nature that makes all the past 5 generations believe in what we do today?  Have we been born and inbreeded with an impulse to lie, hurt, or harm others; only to get ahead ourselves?

It has always bothered me how people like this come across and get ahead.  It has also always bothered me how these people come across with this syrupy, sweet, sincerity; yet are capable of gross sabotage preying on the weak and those under them.   They don’t think twice about anything.  They use their status, power, and leadership, to compete further only to get ahead them selves!   And, they take away any chance or possibility to make someone else’s life meaningful or memorable in a positive way.  These people have no reluctance, conscious, or mindfulness when it comes to anyone else but themselves.   It doesn’t seem to bother, hinder, or concern them that when someone less fortunate is put in harms way-  These people, within our past generations, have little to no consciousness in hurting; wounding, ill-using and treating others only to get ahead themselves first.  Despite everything, and withholding all from everyone else, they continue to live their lives in the manor which “THEY” see fit.   Without understanding the effect they have made to society.

So Gesundheit and Whispers of Hope have worked throughout the past forty years to change that.  They like the Dr. Kramer’s, and the Al Gilberts of this world have never forgotten the human aspect of the healing arts.  They have not forgotten how to touch other people’s lives with a sincere smile, a kind word, or giving from their heart with nothing asked in return.

“At Gesundheit,…they…see deep, intimate friendships between patient and doctor.”  Why then, can’t we be mindful enough to do that?  Why can’t we begin to break down all these dishonest, harmful barriers in this generation that have such a deep human effect on ours lives? Why can’t we begin to heal our planet with kind and genuine words?  Why can’t we be honest  and admit that we have made a gross wrong step in taking humanity out of the whole person and the holistic healing process.

Messenger is Freedom

When I was a little girl, there was not the assertive technology we have today.  My mother, father, sister and I used paper and pen to write letters, cards, messages, notes and communication.  We did not have the luxury that today’s generation takes for granted. It was very difficult to communicate across the world in a minute’s time.  Nor, could I pop on the computer and connect with my dearest friend’s instantaneously.

When I was seven and eight years old, I remember banging away at my parents old Underwood typewriter.  What a gas!  It was a thrill!  I would move our dining room chair over to the credenza, where it stood, take out a sheet of 8 by 11 typing paper, line it up perfectly with my right hand so I could insert it properly, and roll it to the beginning of the page.  Somehow, this old machine gave me a gift.  Who knew what was to come in decades because of this writing instrument.    Look at the freedom it inflicted inside of me and so many others?  Who knew that this typewriter would free many a minds?  Who knew that it would allow people to defy all odds?   But it did.  It captivated, mesmerized and fascinated so many of us.  That eventually it escalated to a whole different level.   And look at the freedom it has brought!

This Underwood enticed me.  It lured me.  And it called me to attention by sitting at the keyboard hypnotized by the though of what I wanted to say just like Rosalyn Russell, in The Front Page, and, William Holden, in Sunset Boulevard.

At that precise moment, I was spell bound; I was taken in by the moment.   I couldn’t do anything but let my thoughts pour out of me, filling my mind, my being, my fingers, and my veins, with a burning energy to write.    Word by word, notion by notion, they began to flow.  With each deep breath I would sit very still as the images and ideas came to mind; allowing them to simmer for a second.  Oozing and trickling down through my fingertips, like a fresh pot of percolated coffee.    While allowing my consciousness; to merge with my sub-consciousness as it revealed to me what I wanted to say.    The words were there!  The words flowed all the way down through the cover pads on the tips of my fingers; onto the keyboard like they were always there.  Miraculous!   I came up with something to say; speaking clearly in a voice expressing myself by pounding away at the keyboard.  And I do mean pounding at the keys.  This gal with a learning disability, who could not even write a clear constructed sentence, was typing.  What a moment!  Wow!  What a significant moment to have these words, form a sentence, and come together for me.

And, even though I wasn’t an Emily Post, I was compelled, constrained, and,  duty-bound.  I was captivated to type on this wonderful, old, antique machine and write something sensational.  Something that would capture, engage, and catch people’s attention- something that would draw the reader in; something to stimulate their interest.

Thus, when I watched these old classic movies, they released a passion inside of me.  They released  a fervor, a  zeal, and an enthusiasm which sparked my imagination. Since then, times have changed.  Thankfully, now, in our day and age, I can send an email message around the world in just a few minutes time.  I can connect, click, and voila, my party is their in a flash. I can also connect through Yahoo, AOL, ICQ, or Windows live, and have a freedom I never experienced as a child.  Instead of talking on the telephone, with a party-line, I can talk through typing. I can also sit back at my desk leisurely, talking through Skype with a video cam.  Who would have thought…  forty years ago?

It gives people with motor coordination issues a freedom I never had.  A freedom to have a meaning and purpose, where otherwise might not be.  A freedom to engage in conversation, and a freedom to make connection‘s with people their own age and contacts with those of same likes, dislikes, and interest in a moments time.

What my generation got through imagination and visual imagery, the past two generation have gotten in technology.  This freedom would not exit today if we didn’t allow ourselves to dream and experiment and to defy all odds, as well as to be a team in leading technology.   Messenger has taken us to a whole other level and has given many, thousands of people, otherwise confined to watching T.V. a voice and a new outreach in life.

Alterative Appearance’s

Most of my life, unlike “normal” people, I have had to mend myself back to health numerous times. It was not only when I was an infant but throughout.   Needless to say, it has been extremely difficult to convince medical authority I knew what I was talking about.  If the tests on the medical report didn’t say it, then what I was saying didn’t prove a single thing.  The only solution, even though the doctors won’t admit they are doping us up, all they want is to prescribe medication because they, themselves, didn’t know the answer, nor, did they know how to cure the symptoms and treat the whole person.

They themselves, with all the medical training and book learned advice, are more at a loss then they care to admit.  If there isn’t a drug to push or a drug to subside the manifestations, then some kind of surgery, MRI, or Cat scan is forced, pressured, or urge upon us in an un-diplomatic way telling the patient … “how they CARE about the well being of your health.”  But how about treating the WHOLE person!

Recently, I have been able to restore my pancreas back to health; when a licensed, Family, General practitioner; was ready to shoot me up with diabetic medicine when I wasn’t even diabetic.  I knew imminently, what I needed to do for myself!   No, doctor, was going to belittle me, or dictate how I should live.  She was not going to induce drugs just for the sake of it.  Nor, was she going to destroy my own confidence in myself.  Neither was she going to deprecate my worth to build her own self up, by saying…”My way has not worked…”

This has been a long tradition throughout my entire life.  When I was younger, doctors wanted to carve up my disabled hand and good leg like a turkey.  If I allowed this, I would have two legs that were deformed and a hand that would be hanging by a string, useless, and worse than it is.  If I hadn’t cared about myself to the degree which I do, and spoke up for myself fighting traditional medicine, I would be far worse off and sicker today, than I actually am.

Some how, some way; I have been blessed with a gift to know what is truly right for me, and my body.  I some how always distinctively know when something is or is not right.  Some how my body and being knows when something is not kosher.  That is when a wave of feelings, my six sense, and my intuitiveness self takes over.  I salute and stand up to attention with a perceived perception that makes me stop and think.   That has kept me from listening to un-wise doctors, and medical disasters.

Whether disabled or not, doctors seem to over-step their boundaries.  They seem to think that because we are disabled physically, we don’t know a thing.  They seem to think that the “test” knows all.  And, they seem to think that it is their job to control our lives and ruin our bodies.    The medical profession, drunk on its own power, is unwilling to accept alterative medicine and healing not taught in a traditional setting, nor, are they willing to look at other attributes or classifications that bring comfort and true holistic healing to the person needing it.

And so, I am here to tell all of you; that this young woman has added forty years to her life. This woman’s gene pool was destined for hardening of the arteries, strokes, and diabetes.  This woman; since the age of twenty, suffered needlessly; unknowing her pancreas could not and would not digest foods properly.  Yet, yield and produced health and well-being.  And, this lady, stood steadfast for all these years till she found the answer.

Dusting with Independence

How many of you reading these articles of mine, have had difficulty picking up trash from a dust pan after cleaning your floor?  It’s easy, one would think.  Right?  Wrong!  Actually not!  Think about it.  For many years, decades to be exact, I have avoided all attempts using a dust pan; because the dirt that I swept up would only gather underneath, instead of where it really belonged.  Frustrating yes- So frustrating and aggravating that I would give up after 5 endeavors of trying to get this dirt where it was meant to go.

And this is not like me, I’ll have you know.  Yet, this act of trying to accomplish this feat and undertaking   caused much annoyance and exasperation.  So, that I found new alternatives and choices for many years.  Thus, to be totally independent of anyone, I selected a vacuum in its place.

However, now, I must change my routine because I am restoring and adding new hardwood floors in my house.  Beautiful, yes!  Although it will require; and demand me to alter my independent ways.    As the old way, definitely is turning out to be a hindrance.  Without a doubt, outmoded and outdated.

Who, then, in their right mind is going to drag a vacuum across a newly shined and finished hardwood floor?  Not Me!!!   Because, I am not going to ruin them!  Hence, I am going to have to find a new adaptive way.  A way that will work for me-   and me alone!  A way which will allow me to clean my floors independently-   And, a way that will help prevent me from scratching them.

So, guess who went to Lowe’s?  I did.  And guess who bought a new dust pan with a handle and broom?  Um hum!  And guess what didn’t work?  You got it!  And,  why?   Because the rubber on the bottom of the dust pan; was tweaked.   Bent and lifting from the floor where it should be smooth and aligned.  So as maddening, irritating, and infuriating as it was, I had to deal with it.  I had to suck it up, gain my composure, and take the one I had from the garage, which we used for the garden, and use it for the use in the house.     What alternative did I have when the older one worked better than the new one I just bought?  So as clever as I am I  gave me my own freedom.

Making Health Food Shakes In the Rain

What do you do on a raining afternoon when it’s cold outside besides sitting in front of the fireplace, dappering at the computer,  talking to a close friend, listening to music, watching a good movies, giving oneself a facial, and playing a board games to occupy ones time.

I like to make health food shakes, loaded with bananas, apples, blueberries, strawberries, blackberries, and raspberries. In my opinion, that is a wonderful way to spend an afternoon like this.  It is yummy to the tummy, and delicious, too!  Loaded with vitamins, minerals, and nutrient and gives me a spring to my step.  And , a vigor to my bounce.  That is what I did for fun today!   I even got to lick my fingers off.  Um, um good!

This is an enormous treat for me.  Especially after many decades of being challenged with many food allergies, and not being able to eat much of anything that I liked.  So, to do something as simple, sweet, non-threatening, and health-giving;  it brings me a joy I can barely express.  As I sit here typing to you, I am very happy, content and relaxed.  How about you?

Guidelines: How to Treat a Person with Cerebral Palsy

Guidelines: How to Treat a Person with Cerebral Palsy

  •  A person with C.P. would like to be treated like every other “normal” human being.
  •  A person with C.P. wants to be treated with dignity and respect.
  •  A person with C.P. wants to be given real choices and real opportunities to choose for
    themselves.

    • Realistic choices and opportunities so that people with C.P. can honesty survive
      in this world.
    • Shelter
    • Food
    • Clothing
    • Medical
    • Transportation
      • Car
      • Insurance
      • Gasoline
  • A person with C.P doesn’t want to be held back in life because of another person’s
    professional judgments.
  •  A person with C.P. would like to be asked if they need help. (Please don’t assume
    anything)

    • Emotional aid
    • Physical aid -like being moved in a wheelchair
    • Monetary aid- to move forward in life- to get a job- to go back to school- to get
      off governmental assistance.
    • Ask what kind of daily assistance one needs if needed.
    • Give the same kind of compassion that you would want.
    • Listen to/ and talk with C.P. individuals like you would anybody else.
      
  • Give a person with C.P. a chance to pursue a self-directed career.
    • Employment-don’t discriminate.
    • Bring opportunity to the table of conversation.
    • Don’t label or slam the door closed on a person with Cerebral Palsy, just
      because they know their abilities and talents better than you.
  •  Give people with C.P. a choice
    • Allow them to get funding to better themselves.
    • Allow them to complete their training or education. ( in the field they choose.)
    • Don’t pigeon hole anyone.
    • Allow them to develop personal relationships.
    • Encourage life choices outside of approved government settings.
  •  Set up training programs in each state to teach and educate what people with C.P. need.
    (Not all Cerebral Palsy is the same.)

    • In all governmental Agencies and departments
    • Social Services
    • Police Department
    • Independent living and Rehabilitation Agencies
    • Educational Institutions
    • Society as a whole
    • One- on-one training group training programs
  •  Set up more Laws to protect individuals with C.P.
    • More medical benefits to get the treatment one needs to survive.
    • Food stamps should automatically be given to survive.
    • Safe and secure Housing that is affordable for each client’s needs/ wants /desires