Honored to Serve–My Time on a Board

Photo of Karen in 1998

This is me enjoying the sun in a park while I was on the Harbor Regional Board

Harbor Regional Center is in Torrance, California, where it provides a wide range of services to people with disabilities and their families.

I volunteered at the Center. Eventually, the management asked me to sit on the board of their Consumer Services Committee. This was in 1998. Because I had disabilities, and because I had devoted my life to helping others with disabilities, they wanted my perspective on how they could improve the services they offered.

I eagerly accepted. Being on a board was a first for me. I felt honored, even though this would be another volunteer position that cut into the time I needed to earn my living as a fitness instructor and dance teacher.

This was during the prime of my life. I had already learned a lot and wanted to share my knowledge. Through my own cerebral palsy and dyslexia, I had learned to be independent and interdependent in a dependent world. Despite having a learning disability, I had learned to read. I had learned to walk without a leg brace, despite cerebral palsy. I had leaned to deal with not only my own feelings, even about being labeled mentally retarded because I tested poorly. All these life-giving lessons made me think perhaps I could give back some whispers of hope, be a voice for the voiceless, and an example of what change could look like. I would be the right kind of change, without interference from so-called experts with their own agendas.

I wanted to make my time on the board show that people with disabilities can define for themselves what kind of support they need. This was a new idea at the time. It went beyond what was then the norm. People should not be confined, but freed. I wondered what I would learn from this new experience. And I wondered where it would take me.

Serving on the board was an important part of my effort to bring about a more inclusive, open, and fair society. I emphasized five main ideas.

1. We are human beings and want to be treated with dignity and respect.
2. We have the same inalienable human rights as people without disabilities.
3. We do not want to be looked down on.
4. We need meaning and purpose in life. We want to set our own direction and create our own meaning. No one wants to spend their days on meaningless busywork, which was what most institutions and programs gave us.
5. We have the right to choose which services we receive. Professionals cannot decide for us. People with disabilities should be able to choose from a variety of options.

Being on the board was one sure way I could lift and nourish. I could listen, extend my support, and raise people’s hope. I could be a friend and help them smile and work through their issues. Perhaps, just perhaps, by coming together, we could create a new mindset. I could help them draw upon their experience, wants, and desires to see that they, too, could change their lives and learn to think differently about their situations.

Now, it is twenty-two years later, and we are still grappling with the same issues. Although we have made progress, we still need to show the world who we are, what we need, and what we can offer. The world does not know us as we truly are.

We humans need to build each other up, not tear each other down. We need to find ways to communicate effectively, to understand one another, and to articulate our needs. Just because someone may dress differently, have a different skin color, a different ethnicity, or special needs doesn’t justify taking advantage of them. There is no need to tear each other apart, make it more difficult for anyone to accomplish their goals, or stop them from reaching their dreams. We all need to stop feeling threatened by people who are physically different and want more for themselves. We need to open up to everyone. On a social level, this must happen regarding opportunities, medical insurance/care, and government services.

Then, perchance, we can all live in harmony. I feel the way I do because this has happened to me my entire life.

In closing, I hope all of us in our world can work out our differences, help one another, and change our mindsets; because, without this, nothing is possible. We have seen for generations the other way does not work.

My question for you is how can we make this happen?

The Healing Horse, Ch. 27, Scene 10: Horseshoes Don’t Have Shoelaces

photo of a lucky horseshoe nailed to the side of a barn

This is the last scene of Chapter 27, and a happy one. But stay tuned for some serious drama coming in Chapter 28, as Karen sees how badly family dynamics can go… 

If you enjoy my writing, please like and share.

(Image attribution: Man vyi, Public domain, via Wikimedia Commons)

Scene 10: Horseshoes Don’t Have Shoelaces

Karen was so excited by her success at school that she ran all the way to the stables.

“Pegasus! Where are you?”

Her mentor walked around the corner of the barn. “You sound excited. Is everything okay, Kitten?”

“it’s better than okay. I turned in my report—the one I told you about—on Connecticut. My teacher had trouble believing I’d written it. Then I showed him my notes, and he could see I had. He almost cried, he was so happy. He said I’d go to college for sure. Then I told the class that if I could do it, they could too, and they cheered for me. Even on the bus home, they cheered. I’m the school hero.”

“You’ve come a long way from the little girl who would not give up on learning to tie her shoes.”

Karen thought fondly of Miss Kimiko, the occupational therapist who had figured out how to teach her about the laces. Karen never gave up. Neither did Miss Kimiko.

Pegasus looked her in the eye. “How do you suppose you did that great report?”

“My new study skills, of course.”

“All because of your new study skills?”

“Yes.”

“Then isn’t there someone you should thank?”

“Miss Natalie… yes.”

“Hop on my back, brave Kitten. I’ll give you a ride home so you can call her.”

He walked to the nearest fence so she could climb up onto him. Then he took a few steps and stopped.

“Hurry up, Pegasus. I need to call Miss Natalie right now.”

“I can’t, Kitten. My shoelaces need tying.”

They both laughed, and Karen hugged his neck. “Oh, Pegasus! You are so funny. Horseshoes don’t have laces!”

“Good thing, Kitten. Because horses don’t have hands.”

They laughed more, and he broke into a trot.

Original text ©2022 by Karen Lynn-Chlup. All rights reserved.

The Healing Horse, Ch. 27, Scene 9: Cheers for Karen

photo of confetti in the sky

On the bus home after her school report, Karen gets a happy surprise as the other kids cheer her.

If you enjoy my writing, please like and share.

Scene 9: Cheers for Karen

The kids on the bus home from school were rowdier, and happier, than usual. The ones who had seen Karen’s presentation had told the others, and word had spread through the school.

“Karen did an A+ report… Teacher couldn’t believe it… Then she showed him how she did it… He almost cried, he was so happy… We cheered, and then she told us if she could do it, we could do it too.

As Mr. Hinton slowed the school bus near Karen’s house, cheers went up. The students chanted, “Ka-ren! Ka-ren! Ka-ren! Yay!” over and over.

Tammy, who rarely tried to speak to anyone other than Karen, raised her voice and said, “Let’s all remember what Karen said. We don’t have to let our disabilities stop us. If Karen can do it, then so can we!”

Amazingly, her words came out crisp and clear. The uproar in the bus stopped. Everyone looked at Tammy and nodded.

Mr. Hinton stopped the bus and opened the door. Karen stood up. As she walked up the aisle to the front of the bus, all the students who could reached out to shake her hand or pat her on the shoulder. Mr. Hinton said, “Karen, the whole school is proud of you.”

She hopped down to the ground and waved as the bus drove away. She was tired. It had been a great day, but emotionally exhausting.

Mama had warned Karen that she would have to work late, so she would not be home until after Karen returned from school. So instead of going into the house, Karen headed for the stables. She needed to talk with Pegasus and get herself centered.

Original text ©2022 by Karen Lynn-Chlup. All rights reserved.

(Image attribution: nathanmac87, CC BY 2.0, via Wikimedia Commons)

 

 

Tying is Trying

diagram of how to tie a bow knot step-by-step

How many times have you tied your shoelaces? How many times have you looped your ears and pulled the strings through? How many times were they too loose? And how many times did you pull those ears tight enough so you could walk without them falling apart?

It’s not easy tying shoes with one or two fingers, or even with one hand, like me. But if we keep practicing with what we have, we will master bow-tying and anything else in our lives. It took me a long time to get those show laces right. It took a wonderful occupational therapist to show me how. Simple for some, tying laces was not for me, with only one working hand.

We have to keep building up our strength and putting our best effort forward to accomplish our feats (pun intended). It takes a lot of encouragement to use our abilities until we get something just right. When we are children, we need that encouragement. As simple as something might seem, it’s not always simple for us. It takes practice and dedication. Time can be our best friend. Starting is the key.

I affirm: today I will practice, practice, and keep practicing for as long as it takes. I will keep learning how to loop my bows securely. I will learn how to hold them tight enough, in place, and nurture my movements until I’m able to pull the ears through. As a person with a disability, I am committed to learning to tie my shoes.

That’s what I told myself when I was seven years old and struggling with shoelaces. Now I say, if I can do it, if I could do it, then you can learn it too.

Keep your faith in yourself. You can do it too!

Original text ©2022 Karen Lynn-Chlup. All rights reserved.

(Image from OCAD U, CC BY-SA 3.0, via Wikimedia Commons)

The Healing Horse, Ch. 27, Scene 8: If I Can Do It, You Can Too

map of connecticut

On her first day after spring break, Karen reads her report aloud. At first, the teacher can’t believe she wrote it, but she explains how she did it. He’s so happy, that he almost cries. 

If you enjoy my writing, please like and share.

(Image attribution: cropped by User:Cmprince, Public domain, via Wikimedia Commons)

Scene 8: If I Can Do It, You Can Too

The next Monday was the first day of school after break. Karen took her seat in the social studies classroom and carefully placed her report and display on the desk in front of her.

The teacher said, “Welcome back to school, kids! I hope you all had a wonderful spring break, and I’m eager to see your reports. You can take turns reading them aloud to the class, and then we’ll pin your displays on the bulletin board. Who wants to go first?’“

Karen remembered how ashamed she used to be when a teacher asked for a volunteer. She had always been afraid of letting anyone see her work. But that had been then, and this was now.

“Me!” she said. “I want to go first.”

“Karen, that’s a surprise. But come on up to the front and go ahead.”

She carried her report and display to the front of the room and stood with her back to the greenboard. She rested the display part on the chalk tray and leaned it so everyone could see the map of Connecticut. Then she read the report out loud.

The teacher looked at her with his mouth open. He frowned and said, “Could I see that report, please?”

Karen felt something was wrong. His look said he was suspicious of her. He scanned through the report.

“It’s your handwriting, all right. How did you find all the information?”

She got it. He thought somebody else, like Mama, had done the report. He thought she had cheated. She took a deep breath. This was no time to lose her temper. She opened the bag and took out her outline.

“See, I made an outline that followed your written instructions so I wouldn’t leave anything out. Then I looked up each piece of information and wrote down where I found it. Like here.” She pointed. “Page seventy-two of History of the New England Colonies. Then I started with a clean piece of paper and wrote what I found out, but in my own words. After I finished writing, I traced the map and flag. It’s my new study skills. I’m learning to plan ahead and do things a step at a time instead of just jumping in and then getting all disorganized.

The teacher smiled, and she thought she caught the gleam of a tear in one of his eyes. “Karen, this is really good.” His voice sounded husky, like he was feeling emotional. “You don’t know what it means to a teacher and see a student take a giant step like this. You’re always talking about how you want to go to college. If you keep up like this, nothing can stop you from achieving your dreams.”

Karen said, “Thank you,” but no one could hear her words. The rest of the class was cheering and clapping their hands too loudly. They were cheering for her. They were clapping for her.

When they stopped, she quietly said to them, “If I can do it, you can do it too,” and returned to her seat.

Original text ©2022 by Karen Lynn-Chlup. All rights reserved.

Changes Are Coming at a Gallop!

photo of carousel horse

Dear readers,

I have decided to make a change in how often I post scenes from The Healing Horse. I have been posting them three times every week, and now I want to cut back to one. Why? Because I have not been able to post much of anything else. The Healing Horse posts keep me so busy! 

So beginning this week, I am going to post a scene from The Healing Horse once a week, on Wednesdays. 

Instead of seeing three scenes from The Healing Horse every week, you will see only one of them and blog posts on other topics, such as how I cured my diabetes and high blood pressure (and, yes, it is possible no matter what your doctor thinks), my interview with Prof. Sean P. Dineen, and other exciting things. 

Please stay tuned and remember

If I can do it, you can do it too!

Lots of love,

Your Kitten (Karen Lynn-Chlup)

(Image by Kim Traynor, CC BY-SA 3.0, via Wikimedia Commons)

The Healing Horse, Ch. 27, Scene 8: Karen Writes the Report

map of USA with Connecticut highlighted

On her first day of spring break, Karen uses her new study skills. She stays calm. She gives herself plenty of time, and then she discovers she can write a report, without help, and a good one at that.

If you enjoy my writing, please like and share.

Image attribution: This version: uploaderBase versions this one is derived from: originally created by en:User:Wapcaplet, CC BY-SA 3.0, via Wikimedia Commons)

Scene 8: Karen Writes the Report

On Monday morning, Karen got up early, just like on a school day. But instead of catching the bus to school, she sat down at the big credenza in the living room and studied the books she had brought home from the library. 

She reread the written instructions the teacher had given her. It listed everything that was supposed to go into the report, like how Connecticut got its name and what its state flower was. Working from it, she wrote an outline of her report, so she would be sure to include everything he wanted. This was the planning part. Then she found the pieces of information by using the indices in the library books. She wrote down the names of the books and the page numbers where she found things on her outline. That was the research part. From there, writing the actual report was easy. She looked up each piece of information and wrote a few sentences about it. After she finished writing, she traced a map of the state and the state flag. After coloring in the flag, she glued them to her display board. She was done by noon. 

She sat back in her chair and smiled. Mama and Pegasus were right. The report was easier after taking the weekend to recenter myself. And with my new study skills, I did the whole thing in one morning. Now I feel like I can organize anything. I’m going to eat lunch and spend the afternoon with Pegasus. 

Original text ©2022 by Karen Lynn-Chlup. All rights reserved.

The Healing Horse, Ch. 27, Scene 7: Pacing and Renewal

image of Spartan running girlKaren gets carried away with her enthusiasm, but Mama and Pegasus keep her grounded.

If you enjoy my writing, please like and share.

(Image of Spartan Running Girl by Caeciliusinhorto, CC BY-SA 4.0, via Wikimedia Commons)

Scene 7: Pacing and Renewal

The next morning, Karen slept in. After she washed her face and brushed her hair, she went back to her bedroom instead of to the kitchen. She scooped up the stack of library books and her school bag so she could start on the report first thing.

In the kitchen, some of her books fell on the floor. She sighed. Always trying to do too much. Carrying too much. She plopped the others down on the big table with her school bag, then picked up the ones from around her feet and pulled out a chair. The toasting bagels smelled wonderful. She swallowed and tried to ignore the aroma.

“Mama, I want to get started on this report, like Miss Natalie said I should. ‘Start immediately, so you have time to get it done.’ And I need the big table. This won’t fit on the desk in my room.”

“Oy veh! My Krana Layala. Are you in such a hurry you can’t take time to give your mother a hug or eat breakfast? Did Miss Natalie tell you that? And you can do your report on the big credenza in the living room. The kitchen table might have food on it. Those are library books, so we have to be careful not to get them dirty.”

Mama gave Karen a big smile. Her face lit up as Karen put her arms around her and rested her head on her shoulder. “That’s more like it, my Krana Layala.” She hugged her back and sighed.

“I’m sorry. Miss Natalie never said to be rude or skip meals. I’m just eager to use my new study skills.”

Before Mama could reply, they heard a whinny through the window.

“Pegasus!” Karen said. She ran to the window as he stuck his head through it and hugged him, arms around his neck.

“How’s my girl? It’s a beautiful Saturday. No school today. Hop on my back, and we can spend an enchanted day together.”

Karen looked to her mother, but Mama remained silent.

“I can’t, Pegasus. I have a big report to write, and it’s going to take all week. I have to read all these books.” She pointed at the stack on the table. “I can’t even take time to eat breakfast.”

She watched as Pegasus and Mama exchanged looks. She knew she was making a mistake. At least one. Maybe more.

Mama said, “My Krana Layala, I know you’re excited, but does that change your body’s needs? If your brain won’t work right, will that help you do your report?”

“No, Mama. It’ll throw my perception off, and I don’t need that.”

“Then at least have a bagel with a schmear.”

“Yes, Mama. You’re right.” She pushed the books to the back of the table and set her school bag by them.

“There is something else to consider.” It was Pegasus. She looked up at him. He spoke slowly, emphasizing his words. “Your spiritual state, Kitten. You started with Miss Natalie just last week. She has already taught you a lot. That’s good. But you need to let her wisdom settle in so it becomes part of you, deep inside. Besides, you have been in school all week. You need time to regain your center, time to nourish your soul. Trying to learn new material and write a report when you are not centered … You understand.”

She knew it would lead to a disaster or at least to frustration and wasted effort. What had she been thinking? She knew she had to eat, and she needed time to replenish her spiritual well.

“You’re right, too, Pegasus. I can take the weekend off and start the homework project on Monday. It’ll be less difficult if I’m rested and centered. I let myself get carried away with enthusiasm. And with fear I’ll run out of time.”

“Have no fear, Kitten. You will not run out of time. You will write an excellent report. You have the mind for that, but you have to give it what it needs to function. Pace yourself like a long distance runner.” He sighed. “But enough about the report. You have learned another big lesson, one about pacing yourself. Now let’s have some breakfast. Horses like bagels, too, you know. Wink, wink.”

They all laughed, and Karen helped Mama fix their breakfast and clean up before spending a wonderful day renewing her soul with Pegasus.

Original text ©2022 by Karen Lynn-Chlup. All rights reserved.

The Healing Horse, Ch. 27, Scene 6: Library Research

photo of original santa monica public library

Karen has always been full of enthusiasm, but now that she is getting tutored and learning to learn, she is eager to take on a difficult school assignment.

If you enjoy my writing, please like and share.

(Image is of original Santa Monica Public Library Image Archives, Public domain, via Wikimedia Commons)

Scene 6: Library Research

That afternoon, as the school bus approached her home, Karen thought about Connecticut. She visualized what her project would look like when it was done. In her mind, she could see the map she would draw, and she read and re-read the list of facts Mr. Jones wanted her to find out.

After running into the house, she said, “Mama, I need to go to the library right now. The social studies teacher gave us a big report assignment that will be due after spring break, and I want to start on it immediately. That’s what my tutors said to do. They said to start everything as soon as possible, so I have plenty of time to finish it.”

Mama and Karen hopped into the Bel Air and raced to the library, where Kitten got help from the librarian and checked out a tall stack of books.

Original text ©2022 by Karen Lynn-Chlup. All rights reserved.

The Healing Horse, Ch. 27, Scene 5: The Spring Break Assignment

image of flag map of united statesWhen Karen’s geography teacher gives a homework assignment to be done over spring break, she does not groan. She thanks him. Her tutoring has given her confidence that she can succeed at academics.

If you enjoy my writing, please like and share.

(Image courtesy of Flagvisioner, CC0, via Wikimedia Commons)

Scene 5: The Spring Break Assignment

Soon after Kitten began studying with Miss Natalie and Miss Wayburn, she was in her geography class.

“Students,” the teacher, Mr. Jones, said, “Spring break will be next week, and I am going to give you a homework assignment that will be due when you get back. You can start work on it today and then finish it over break. Now, I’m going to show you what I want you to do. First, pass these instruction sheets around. Everybody take one.”

Groans from the students filled the air. Some of them put their heads down on their desks, but sat up again to take one of the instruction sheets.

Mr. Jones thumb tacked pictures and a map to the bulletin board.

“This is an example of what I want. I’m using the state of Alaska, but it could be any state. I want a map of the state that you drew. Tracing is okay. Then I want . . .”

Karen scanned her instruction sheet. It had Connecticut written at the top. That must be her state. She listened carefully to what her teacher said.

He finished and asked, “Does anyone have any questions?”

The room was silent. Then Karen could not resist expressing her feelings.

“This is just what I need. Now I can plan ahead and use some of the skills I’ve been learning from my tutors. I’ll go to the library as soon as my Mama can take me. Thank you, Mr. Jones.”

Original text ©2022 by Karen Lynn-Chlup. All rights reserved.