Reflections of My Heart: Leaves of Stillness

Photo of brown leaves from a tree

One night, back in 1992, a nightmare rocketed me out of a deep sleep. I awoke sweating and trembling in terror, shaken to my core.

Wrapped in only a thin, black nightgown, I had stood, burning in agony within a blaze, the flames leaping all around me. And I had nowhere to run.

Awake, I knew I had to face this dark part of my soul, the part that was trying to heal from the negative feelings that came with facing my life situation. Part of me wanted to bury all the hurt, pain, negativity, and darkness, but suppressing it would never work. Inwardly, I would burn to death if I tried.

There was fire all around me.

I asked myself, what did I do to create this within my being? Why did I feel bad about speaking up for myself? Was there something wrong with me for daring to be brave and advocate for myself?

Or was the source of my self-doubt outside of me, in the lack of understanding and inability to see and hear me and my truth, on the part of the so-called experts, who discounted me and made me feel less than others, who dismissed me as a human being trying to better myself, my situation, and to fit into this world?

While alone and defenseless, in this dismal emptiness, I rose to my feet as a new me. The fight to live the life I wanted as an educated professional, my war with the California State Department of Rehabilitation, helped me become the person I am today. My subconscious self emerged from the nightmare with a fresh voice and strength.

The poem below symbolizes how facing my darkest moments changed my character and my life. I did it in the face of adversity and by myself. If I can do it, you can do it, too. And, of course, I will be here for you.

LEAVES OF STILLNESS

The night
Knocked at my window
Haunting me
With a black shroud and
Carrying my body to that
Cold, barren tree
Which covered me
With bronze, burnt
Leaves of stillness

Oh
I cried!

Time tip-toed by,
Leaving me
Lonely and defenseless
Only to see myself
Through my own
Desolate attitude!

You can order my poetry collection, including this poem, here: Reflections of My Heart.
Original text ©2024 by Karen Lynn-Chlup. All rights reserved. Image by Tima Ivanov, CC BY 3.0, via Wikimedia Commons.

Reflections of My Heart: Greek Parthenon

This poem was written in 1984, when I was told I could not continue my education. That is, I could not attend college.

I was destroyed. Heartbroken. I felt like I had nothing left of my life—nothing else to give myself or to others.

I had worked hard to break through every barrier. Yet, no one wanted to guide me or acknowledge what I had done or what I could accomplish. They didn’t recognize who I really was or the good I could offer. Nor did they want to listen to my words and the importance of what I said. They would not give me the opportunity, much less the support I needed to fulfill my very achievable dreams.

What would happen to me? Was I going to rot my life away? Was I going to end up in an institution because the IQ test could not measure my intelligence correctly? Sadly, this test can’t measure the IQ of a person like me, someone with dyslexia.

How would I care of myself? How would I live on my own and pay for food, rent, and utilities? How would I survive after my mother died?

I was a grown woman by then, thirty-four years old. It took me five years. Even after I won my suit against the State of California to get my Associate of Arts degree, and I got it with honors, but most people at that age already have degrees. By then, they probably have two or more and hold positions in the field of their choice. and I had five more years to go.

All the so-called experts looked at me as if I were inferior, a box of produce damaged in shipment, but I had to make something of myself. When the California State Department of Rehabilitation deemed me mentally retarded for the third time, I knew they would not help me.

I had worked my whole life for what? Nothing, not even to give to others like I desired. The experts kept shattering my dreams. One counselor, who was deaf, mute, and without compassion, told me I had scattered thoughts. That was how he interpreted my variety of interests, but they were all normal interests, such as dancing, listening to music, reading poetry, and wanting a career in fitness.

At that moment, I felt destroyed. I felt like the ruins of the Parthenon. How was I going to rebuild my life? How was I going to become that person I so desperately wanted to be?

I was nothing more than a shell. I had nothing to look forward to. I had no reason to live, no purpose to wake up for. So I made a reason each day.

Another counselor asked me how I could teach dance with CP and only one functioning arm. One counselor believed in me, but after working with me for three years, he accepted a promotion and left me behind. No one else worked with me or gave me a chance to prove myself. I was hung out to rot with a Social Security check and told I would earn more on SSI than by working. I had no tools at hand to reach my goals and no hope of making my life happen.

In those days, there were no agencies to lend support with compassion to people with disabilities. I day-dreamed of becoming a recreation director and dance teacher. When I told them, the experts all looked dazed with disbelief. Like I could never amount to anything.

But, even though I felt helpless, and no one helped me, I had a fire in my belly. Deep in my inner spirit, I found strength and began rebuilding my life. I found my voice and self. I moved heaven and earth and won a lawsuit that opened the doors to higher education for all disabled people in California, thus changing my life forever. The process of claiming my own right to an education became a way for me to help others, not just myself.

The image of these ruins gave me strength and an inner power that none of those experts in the field could find it in their souls to give. I gave it to myself. I couldn’t give up on myself.

With all my will and power, I searched and found a flicker of light. I kept going and found reasons to keep going. You can, too.

GREEK PARTHENON

My life
Is like the Greek Parthenon
Standing in its own
Ruins
Empty
Never to be built again!

You can order my poetry collection, including this poem, here: Reflections of My Heart.
Original text ©2024 by Karen Lynn-Chlup. All rights reserved. Image by Steve Swayne, CC BY 2.0, via Wikimedia Commons.

Reflections of My Heart: Gentle Imaginings

photo of common lavender in bloom

One day back in 2010, I wrote this poem about all the times I have wanted to lay my head back in a warm tub of lavender bubble bath and melt away all my worries and woes.

I wanted to close my eyes, feel my breath, and rest in tranquility. I wanted to lie there in the solitude of my own being with the soft sounds of music and melodies, drifting me to a place of perfect harmony.

GENTLE IMAGININGS

My bath is a quiet place
Where I can rest,
And gain some sweet repose

In peaceful thoughts
Which sooth my soul
And quiet relaxing music
To drift far, far away!

I stretch out my feet
And close my eyes, listening
To sweet melodies!

And now
That I
Am all alone
Totally, and absolutely all alone,
I can regain my
Perfect harmony!

You can order my poetry collection, including this poem, here: Reflections of My Heart.
Original text ©2024 by Karen Lynn-Chlup. All rights reserved. Image by Sten Porse, CC BY-SA 3.0, via Wikimedia Commons..

Empowering Accessibility: How to Thrive as a Digital Nomad with a Disability, by Jillian Day

[Editor’s note: Jillian Day created 508Assist.org to help people all across the web make their sites accessible to individuals with disabilities. A close family member, who has a visual impairment, had trouble finding a dinner recipe online that he could read easily. This inspired her to start 508Assist.org. When she’s not chasing after her little ones, Jillian enjoys being outside, whether she’s fishing, hiking, or geocaching with her family.]

Image: Freepik

Empowering Accessibility: How to Thrive as a Digital Nomad with a Disability

Embracing the digital nomad lifestyle can be a thrilling adventure, especially when you have a disability. The freedom to work from anywhere can offer unique opportunities and challenges. With the right strategies, you can set yourself up for success, ensuring that your work and living environments cater to your needs. This article explores how to choose disability-friendly locations, find suitable employment, utilize assistive technology, and more, empowering you to lead a fulfilling digital nomad life.

Selecting Accessible Destinations

When you have a disability, selecting the right location is crucial. Look for destinations with strong disability rights laws and accessible public facilities. Research is key—seek out cities known for their accessibility, such as those with flat terrain, good public transportation, and amenities that cater to various needs. Online forums and communities can offer firsthand insights from others who share similar challenges. Always check local resources and support systems before making a decision, ensuring that your chosen destination will not only welcome but also empower you.

Securing Suitable Employment

When searching for remote work, target sectors like technology, writing, or customer service that prioritize inclusivity and flexibility. Utilize dedicated remote work platforms to showcase your skills and adaptability, emphasizing the unique strengths you bring to potential employers. Engage actively with digital nomad and disability communities to discover opportunities and secure recommendations, ensuring you clearly communicate your accommodation needs to perform optimally.

Enhancing Career Prospects with a Degree

Online degree programs offer flexible schedules, allowing you to balance full-time work while advancing your education. Cybersecurity programs equip you with vital skills to defend business networks and sensitive data. You gain practical knowledge on thwarting digital threats and safeguarding information assets. This educational path not only boosts your career prospects but also positions you as a crucial player in any tech-driven organization.

Using Assistive Technology and Tools

Embrace assistive technology to overcome potential barriers. Tools like speech recognition software, screen readers, or customized keyboards can enhance your productivity and make remote work more accessible. Investigate technologies that address your specific needs and integrate them into your daily routine. Many companies offer trials or demos, allowing you to test different solutions before committing, ensuring that the technology you choose truly enhances your work experience.

Designing an Ergonomic Workspace

Designing an accessible workspace is key to your comfort and efficiency. Ensure that your work area is ergonomic and supports your physical needs. Consider adjustable desks, supportive seating, or specific lighting that accommodates visual impairments. Your workspace should be a sanctuary that not only meets your functional needs but also inspires productivity and creativity.

Finding Accessible Accommodations

Secure living arrangements that support your mobility and daily needs. Look for accommodations with accessibility features like ramps, elevators, and barrier-free layouts. Websites that specialize in accessible travel can help you find accommodations that have been vetted for accessibility. Always communicate your specific needs with housing providers in advance to avoid surprises upon arrival.

Navigating Health Coverage and Medical Care

Maintain your health and well-being by securing comprehensive health insurance that covers you internationally. Research insurance plans that offer extensive coverage, especially for pre-existing conditions related to your disability. Also, identify local healthcare providers in your new location who have experience in treating individuals with your specific health needs, ensuring peace of mind as you explore the world.

Marketing Yourself

Promote your skills and unique perspective as a digital nomad with a disability. Build a strong personal brand that highlights your adaptability and resilience. Utilize social media, blogs, and professional networks to share your experiences and insights, attracting potential employers or clients who value diversity and inclusivity. Showcasing your journey can also inspire others in similar situations and build connections with like-minded individuals.

Navigating the digital nomad lifestyle with a disability requires strategic planning and resourcefulness. Prioritize accessibility in your travel and work arrangements to ensure that physical limitations don’t hinder your professional success. Leverage cutting-edge technology to maintain efficiency and connectivity from any location in the world and consider earning an online degree to boost your skill set. By building a strong network of like-minded professionals, you enhance your opportunities and enrich your experiences as a digital nomad.

Empower and inspire individuals with disabilities by connecting with Whispers of Hope. Explore our resources and motivational content today to discover how we can support you and your loved ones in leading fulfilling lives.

Reflections of My Heart: Fruit of the Vine

Photo of dark purple grapes in a vineyard

In 2009, when I met someone who would become a dear friend and colleague, I wrote this poem. I knew, when I was introduced to him, that he was not like many other people I had met in publishing. He truly was a reflection of my self. He was a reflection of my consciousness.

I could tell he was kind. He didn’t put on fronts like others had. I knew My God brought him into my life for a reason, and he has made my life sweet and happy like the fruit on the vine.

FRUIT OF THE VINE

Friends like you
Come once in a lifetime!

Friends like you
Are one of a kind!

Friends like you
Share openly
All the time!

But most importantly,
My friend,
Your heart is divine!

As the One Almighty knew
What kind of person you were
So he brought us together
Only to sweeten the
Fruits of the vine!

You can order my poetry collection, including this poem, here: Reflections of My Heart.
Original text ©2024 by Karen Lynn-Chlup. All rights reserved. Image by Gary Halvorson, Oregon State Archives, Attribution, via Wikimedia Commons.

Reflections of My Heart: Flower Garden

Photo of pink flowers in Santa Monica, California

This poem was written in 1983. One spring day, my friend and mentor and I exercised in a cul-de-sac in Santa Monica, California. We walked up and down a set of over two hundred steps where many people exercised. 
Many of these were aficionados who liked, knew about, and appreciated those of us who fervently pursued an interest in climbing stairs.
After our stair climb, we strolled through streets bordered by mansions. 
In front of one, I gazed at its garden for well over five minutes. As I looked, I grew quieter. My mentor let me drift into a reverie without disturbing me. I thought about why I was inclined to be silent at times. And why I had so few friends.
In that quietude, I enjoyed the stillness and calm. I did not always need to be around people to feel happy. 
I was like those flowers. They knew how to get along and thrive with others. They were as content being with others as they were being on their own.

FLOWER GARDEN

As I walked
And wondered through
The fields today,
I spotted some
Flowers on my way!

Dainty, yes, as can be,
Hidden amongst some
Lonely covering weeds!

I stood for a while,
Looking at them
Ever so silently!

As I pondered,
I asked myself,
Why do you endure such solitude?
Why is your existence so empty?
When you are
Such a pretty flower!

Just then,
A butterfly took me by surprise.
I was in a world all my own!

Uninterrupted, I kept walking,
But I could not help
Questioning my heart!

I continued my journey
While quietly thinking…
Those flowers were my own!

You can order my poetry collection, including this poem, here: Reflections of My Heart.

Original text ©2024 by Karen Lynn-Chlup. All rights reserved. Image by Sharon Mollerus, CC BY 2.0, via Wikimedia Commons.

 

Reflections of My Heart: Crossing Boundaries

An ancient British boundary marker that looks like a footprint.

An ancient British boundary marker that looks like a footprint.

This poem was written in 2014. It was about my friend in Massachusetts. He was going through a mental crisis. We talked and talked and talked, but I could not get through to him to get help. I even called up a mental health crisis hotline to give him a number for someone to talk to. Once again, he wouldn’t accept my help or anyone’s help at all, so I had to back off. I felt lost for words. I gasped and breathed hard with surprise. My friend, whom I thought was my friend, would not accept help. Nor did he ever do anything about his mental state.

The poem says it all. And Happy Independence Day!

CROSSING BOUNDARIES

When someone cares
About a friend,
They cross boundaries that
No one else can see.

They will do anything to help,
To reach out,
To lend a helping hand.

Can’t you see that, my dear, dear friend?
Can’t you see that there is someone who really, honestly cares?
Can’t you see my human heart skipping a beat?

It soars into the spectacular skies.
It swims with fervor and fury.
It races to reach the dauntless finish line,
With the tick-tock of time
Rushing by,
Wishing and hoping to just be in time.

Yes, I care.
I truly care
With my heart,
With my soul.
With the purity
Of transcending oceans,
And rivers,
And lakes,
Flowing ever so sweetly
To touch your life.
Will you let me?
Will you respond to me?
Will you reach out to me,
Like melting snow on a crisp, spring day,
Like the daybreak of the day’s sun,
Shimmering with its gentle glow,
Like the ebb and flow of our tide.

I hope so,
I really do
As I care for you,
And love you,
Just because you are you.

Because you are my friend,
And,
Because you mean so much to me!

You can order my poetry collection, including this poem, here: Reflections of My Heart.

Original text ©2024 by Karen Lynn-Chlup. All rights reserved. Image of Old Boundary Marker on Deanhead Moor, Ripponden Parish by Milestone Society, CC BY-SA 2.0, via Wikimedia Commons.

Reflections of My Heart: Gateway Ahead

 

Photo of three affirmation cards from a deck created by Wayne DyerPhoto of You Can Heal Your Life by Louise HaySomewhere between 1983 and 1985, I wrote this poem.

Again, despite all the tears brought on by grueling life lessons, pain, and worry about how to prove myself to all humanity, I let go and wrapped myself in warm, quiet affirmations. Their words sustained my beating heart. I’m a writer, and I’m a poet, so words not only mean a lot to me, they healed my life.

To find solace, I thought daringly, and opened my heart center. I let go on a deeper level. To liberate myself, I delved further into my distress and lovingly escaped the overwhelming negative thoughts. I walked through a gateway into a new way of living.

Let me tell you about Science of Mind, Louise Hay, and Dr. Wayne Dyer, and their effect on my life. I began my study in 1975, when I was 25 years old.

In my gut, I knew I needed a way, a method, to stay and remain positive through everything I faced then. I knew I needed more of something. I did not want to continue living with the dysfunctions I grew up amid.

I did not want to continue my eating disorder, eating and obsessing about food and what others thought. I wanted a gentle, loving peace within myself and a way to face my emotions without eating over them.

I did not want to kill myself by eating over every emotion I felt, and I wanted to free myself from my fear of food, which my allergic reactions had given me.

I heard about Science of Mind from my Overeaters Anonymous sponsor. After talking with her, I looked up the closest Church of Religious Science and drove to that Sunday’s services. I attended, and when they announced a new session of classes, I signed up immediately.

Beyond that, I needed to build a stronger spirituality and resilience, so I could get through the issues in this lifetime of mine. I didn’t want to be the disabled person who has a sign on her chest saying… look at me, I’m disabled. I also didn’t want people to pity me. I wanted to fit into the world and hold my head high. I wanted to be strong emotionally, spiritually, and mentally.

Besides music, dance, and the arts, I needed to be me and unashamed. With my genuinely sweet and sincere nature, I wanted to expand my horizons by going to my girlfriend’s Lutheran church. I did not want to feel guilty because my mother believed I was a bad Jewish girl if I went to a Christian service.

At my core, I wanted to learn, to become healthy-minded and well-rounded. I did not want to carry my parents’ and grandparents’ unhealthy history with me. I wanted to attract healthy people, and hopefully, a husband.

I wanted to travel and experience life with no one hovering over me.

I went to Science of Mind on my own, because of my thirst to learn and grow as a disabled person with pride. To live and thrive, to hold intelligent conversations, and be like any other able-bodied person was my goal. I wanted to fit into the world with a sense of worth, dignity, and pride in giving to others what I learned.

I experienced this firsthand and found that my God is everywhere I am.

GATEWAY AHEAD

The sun shines for me,
Despite the tears fallen from me.

I wrap myself in a warm, comforting affirmation!
I do not worry!
I look straight ahead,
As I walk toward that invisible gate!

You can order my poetry collection, including this poem, here: Reflections of My Heart.

Original text ©2024 by Karen Lynn-Chlup. All rights reserved. Images are original photographs by Karen Lynn-Chlup and ©2024. Content of the images belongs to Louise Hay and Dr. Wayne Dyer.

 

Reflections of My Heart: Ebbing and Flowing

Image of ebbing tide

Ebbing Away

Here is another poem from a relationship I thought could stand the test of time. But it didn’t.

After college in 1985, I thought, maybe, just maybe, this time things would work out. Maybe this time, this relationship would be strong enough to endure what relationships throughout the universe face—the challenge of lasting.

Sure enough, it didn’t. The signs were there, flashing before my eyes, confirming that this person was unable to handle me as the human I was. He wanted me for one thing and one thing only. And that was not what I wanted. I wanted to be loved and accepted for myself, not just for my outer appearance.

Sure enough, understanding this was like the sun shining over my shoulder, clear and real. I saw it all crystal clear. It was obvious. This man wasn’t for me. But I came away with my self-respect intact, and with a lovely poem.

EBBING AND FLOWING

Like two ships on a vast sea
Our paths meet

We unite with a very
Special union!

Oh, my darling,
Can you see all the secrets
That we have shared
On this roiling ride?

Ebbing and flowing
With each current
And every tide!

Always with a deep, inner strength
And breath that endures
Its turquoise sea.

What’s more!
My love,
You are the only one for me!

You can read my poetry, including this one, here: Reflections of My Heart.
Original text ©2024 by Karen Lynn-Chlup. All rights reserved. Image titled Ebbing Away by J Scott, CC BY-SA 2.0, via Wikimedia Commons. 

Reflections of My Heart: Crashing

Photo of a blue jay fledgling

In 1984, while going for my daily walk to think, rejuvenate, and exercise my body, I looked up and saw another bird. Do you remember the one I told you about before?

Being In tune with all of life, great and small, and having CP, and a learning disability, I was gifted a greater understanding of life than most. This poem is about another bird I saw fall from its nest. My heart broke as I thought, what if I had died because of the vaccine and the doctor who was too eager to listen to his ego, rather than to my mother, who had seen my reaction to the first shot?

He did not listen to his moral compass. It was easier to side with the appealing consensus about vaccinations—that the benefits outweighed the risk of having a child paralyzed with brain damage and having to live her life with all these complications.

Seventy-three years passed, and there is even less kindness and compassion in the world. While the medical community marketers insist the situation is far better, I testify it is not. The doctors have simply added slickness to their moralizing and minimizing.

Do not follow experts when your heart and gut tell you otherwise.

If a patient’s parent tells you their child reacted to the first serum, where, honestly, does the line get drawn? When do the rules get bent? And when are innate intelligence, compassion, and understanding used?

Are doctors taught this is medical school? I think not! After seven decades, did they change the rules? No…

When I was a child, doctors were gods. You didn’t question, as they always knew what was best for you. They were always right. You couldn’t discuss treatments or options. They had the knowledge, and you didn’t. You had to do as they said. And, it is still like that in the course of our present day. If you look through their smiles, you see it clearly.

Today it’s even worse. Today we are bullied into yearly exams where the doctors always find something expensively wrong with us.

If you think and feel like me, you must let your voice be heard. Call your elected officials and let them know, instead of taking a step back by thinking that it is too hard, takes too much time to sit on the phone to reach the right consultant, or you brush it off by thinking somebody else will speak up and out for you. You have it all wrong.

Change will happen only if we do the leg work ourselves.

So I lovingly, with care and much concern, challenge you and pass the baton on to you, my readers.

We must keep the right to be heard with caring and sympathy. Doctors ought to be taught how to show concern for their patients, rather than this harsh coercion.

Too often, in our everyday lives, doctors want to be right, and in control, rather than work with us and be caring.

Does any of this ring true for you, or does it matter at all? It did for me.

CRASHING
In the midday sun,
A newly fledged bird fell from its nest
Crashing to its death!

You can order my poetry collection, including this poem, here: Reflections of My Heart.

Original text ©2024 by Karen Lynn-Chlup. All rights reserved. Image by lwolfartist, CC BY 2.0, via Wikimedia Commons.