Shout Out for Sean Dineen’s New Podcast

My friend, Sean P. Dineen, has begun podcasting. He and his friend, Bill Weaver, are doing a show about strange things you did not know. These are things like strange laws and little-known facts from history. Did you know that Blackbeard the Pirate was eventually beheaded after being killed?

Check out the first episode here:

https://youtu.be/RJ_fJ3ZLJ9I

The Healing Horse, Ch 20, Scene 2: Testing

In physics, the observer effect describes how measuring something can change it. In psychology, there is a similar effect, in which the attitude and instruments of the psychologist can change the behavior of the person being tested. In this scene, under the icy gaze of an angry psychologist, little Karen tries to pull herself together. She knows her test scores will affect the education she will have access to. But her delicate nervous system shuts down under the pressure.

(Image by Koogid, CC BY-SA 3.0, via Wikimedia Commons)

Scene 2: Testing

He opened the door at the end of the hall, and his arm extended again.

“Here we are, child.”

He directed her into a tiny room, no more than a closet.

“Sit, sit,” he said, his voice gnawing on her nerves.

His nose flared.

“Achoo! Excuse me, while I get a Kleenex. We have a lot to accomplish, and I don’t have a lot of my time to spend on you and your problems. Sit down, child, and let’s begin!”

Karen saw how far below him he thought she was. She sat down in one of two white, wooden, spindle-legged chairs, by a two by three foot white porcelain table. On the table were a thick tan file labeled with her name, a stack of testing cards, pencils, pens, a puzzle, a mirror and a coffee cup. The stark white walls had been textured to make the atmosphere warm, but without any pictures or personal touches they still looked sterile. The room was cold, and when she touched the table, it felt icy. She shivered and looked up at him.

So glacial. So very, very glacial and as hard as arctic ice. There is no kind presence, here.

Feeling trapped, she forced herself not to feel limited. She forced herself to focus. She used her willpower to remember how strong and intelligent she was, but she still felt her nervous system failing.

This is how Pegasus must have felt before he came to life, before I rescued him, when he was trapped and thrown on a heap with all the other horses.

Dr. Muñoz began his examination by frowning at her and asking questions in rapid fire, his deep voice taut with urgency. Regardless of what he asked, her stressed nervous system rearranged her sensory input. With every word he spoke, she forgot the word that came before. She could neither visualize them nor recall their sounds. The harder she tried, the more difficulty she had. She could not give the right answers, even though she knew that they were somewhere in her mind. She tried to match his level of insistence, but the more she demanded of herself, the less she could recall.

He asked her about the physics of falling rain and about the names of famous musicians. She understood gravity and condensation in cumulus clouds, and she tried to explain them to him, but she could not find the words. She and her mother delighted in Louis Armstrong, but with Dr. Muñoz’s accent, she thought he was asking her about Elouisa Armstrong, and so he noted that she was unable to appreciate music. Her only relief came when Dr. Muñoz had her assemble some jigsaw puzzles. These were easy, spatial, and nonverbal.

She felt herself becoming exhausted, as the tests drained her of all emotional and intellectual energy. Every effort to bring up a correct response depleted her energy more.

As the session ended, he asked her to repeat groups of numbers back to him, and she trembled inside. This was a decoding problem, her weakness, and exactly what she could not do when she was stressed. Body stiff and rigid, involuntarily shaking, her apprehension grew. She repeated back the numbers: 5, 76, 632, 936, 1066, 90401 and 666064 but she could not see the links between them or recall their order. She knew she must be transposing them and felt overwhelmed. Failure on this part of the test would lower her score even more than not being able to add or subtract without pencil and paper.

The hour with the psychologist seemed like a year with a torturer, and then she was finished. Done.

Without thanking her or giving any encouragement, Dr. Muñoz coldly said, “You can leave, now.”

He pointed to the door, only inches away.

Karen Lynn-Chlup This Able Team Interview

Now that you’ve read my interview with This Able Team, you can watch and listen to it on YouTube. This covers my disabilities, my experiences growing up as a person with multiple disabilities, and how I succeeded at having a career as a dance and fitness teacher, even though the doctors said I would never walk.

Please give it a like and subscribe to my channel.

The Healing Horse, Ch. 20, Scene 1: Following Dr. Muñoz

diagram labeled egocentrism

Chapter 20 is all about how psychological testing can go wrong, about how a psychologist’s prejudice against a child with disabilities can turn an evaluation into a trial, in which the psychologist is judge and jury, and the school then becomes the executioner. Fortunately, little Kitten handles it in stride and does not let it break her brave spirit. (Image by Unknown authorUnknown author, CC0, via Wikimedia Commons)

Scene 1: Following Dr. Muñoz

As the image of Mrs. Pinzetti faded from little Karen’s mind, the bus hit a bump and shook her out of her revery. Then she felt herself slipping back into the memory of another scene that had occurred near the end of the previous school term. Just as a dying person sees his life flash before his inner eye, Kitten recalled her recent psychological evaluation with Dr. Muñoz, the new school psychologist—the one dark day during the weeks after her move into the new house.

Quiet, quiet, the silent hallway had instructed her. Not a murmur, not a sound, not even a whisper through the cracks under the classroom doors—a silence free from all activity, except for the footsteps of Dr. Muñoz and Karen, footsteps that reverberated in Kitten’s ear canals, footsteps that reflected his tone and his polio.

“Come with me,” Dr. Muñoz said, as he glared down at her. He demonstrated by stretching out his arm, pointing his finger, pointing it sharply toward his cubby hole, straight down the hall. His starched white cuffs stretched beyond his black wool suit, and the glitter of his gold cufflinks emphasized the flourish of his hand.

Karen looked down ever so slightly, sliding her eyes cautiously from his brown, balding hairline, down from his gray eyes, and down from his dark brown beard. Down, again, from his face, only to notice the pockmarks on his cheeks. She did not want to offend him. She did not want to make a spectacle of herself by staring, but she had to know.

He turned and strutted ahead of her, towering in his six-foot-two-inch body. His fine black suit was elegant, but why was it bulging at the bottom of one cuff? She saw flashes of metal, metal that looked like a brace, a piece of metal that resembled her leg brace.

Could it be? Karen asked herself. Yes, it could be.

“Come along. Come along, child,” he motioned and repeated in his deep voice and heavy accent.

His manicured fingernails caught Karen’s eyes, as their flash illuminated his every expressive motion with a reflected beam that blinded her sensitive visual perception like a lightning bolt. His words were respectful but his tone was harsh.

“Follow me, please. Please, child, follow me,” he limped and repeated himself.

Karen fell in behind him, but his pace was faster than she could manage. She knew he would be annoyed when he looked back and saw her trailing far behind him. Every time she lifted one foot and set it in front of the other, she became more anxious than during the previous step. She was picking up on his energy and the way he was acting towards her. While she understood what was going on in the spiritual realm and in the physical realm, she was spiritually fighting the negativity that reached her through his actions and demeanor.

She sensed that Dr. Muñoz’s nerves were on edge, too, and this made her nerves flare, even though the evaluation had not yet begun. She felt the fibers that carried sensations to her brain begin to shut down. Fear crept through her nervous system like a fungus, setting off sparks that clouded her senses, as they ricocheted and misfired throughout her body, telling her that she was not relaxed and that she was definitely headed for a bout of severe transposition, which would assure low test scores.

He’s the psychologist. He’s got his degrees, already! Will he help me get mine, or will he label me something I’m not? Will he make me out to be more inferior than I truly am? I must stay positive. If I could handle Mrs. Schmidt and physical torture, I am sure I can handle a shrink with a bad attitude.

She quickened her pace and heard the hallway reverberate as her brace buckle banged against the bars of the brace on her leg.

This Able Team Interview, Part 3

image of Karen Lynn-Chlup delivering a keynote address

This is my third post about my interview with This Able Team. The transcript follows and you can read it on their Instagram, too. Just click here. Be sure to read their other posts, too, especially with Dr. Sean P. Dineen.

The photo is of me giving the keynote presentation at a People First convention. As always, I emphasized the positive.

I was discriminated against by California State Rehab, and they labeled me mentally retarded on three separate occasions, because I did not do well on tasks. This actually started when I was 18 years old. I took my test and went in originally to ask for help to get me a job, because I knew I needed help. Instead, they gave me a battery of tests and conveniently labeled me mentally retarded and put me into a nearby workshop, like GoodWill Industries. It was devastating. I turned every situation into a healthy atmosphere. I smiled and went to work in this workshop with a smile on my face, doing whatever they told me to do, and I wore bandaids on every single one of the fingers on my right hand because I was doing it all with my right hand. And I stuck it out. And I made it. And then I got a full time job on my own, and I worked as a salesgirl and it was fine for a while. But then, I was criticized and bullied, because I could do the job with one hand better than other people could with two hands. It was hard, but I took the challenge on and I was not going to give up. I did not give up on hope inside of my mind. I just walked on and walked on. And then, when I was 25 years old, I had a one-time opportunity to work in the field of dance. It turned my life around. I was an Assistant Recreation Director and then became a Director. I did all the care plans, and I taught dance. I used my talents from what I learned as a little girl and turned it into a healing process for other people. And I just followed my heart. I didn’t do things fast to compete with other people, but I did it at my pace when it felt comfortable. I did so many things for myself. I won the first civil rights case because of the discrimination and I opened the doors for all people to have education. I was on the board of Disability Rights California. I just follow my heart. I wouldn’t let anybody do that to me. It took three years to find out that I won my civil rights case. In the interim, I worked and taught people, I did whatever I could.

The Healing Horse, Ch. 19, Scene 11: Mrs. Pinzetti

You can probably guess from this short scene introducing a new character, that she will turn out to be much darker in spirit than she first appears. Read on…

(Image by sarakgraves via Pixabay.)

Scene 11: Mrs. Pinzetti

As the bus continued its journey from her new home to her school, Karen recalled when she first met Mrs. Pinzetti, the physical therapist who replaced Mrs. Schmidt.

The new physical therapist was a nice lady with a kind manner. Mrs. Pinzetti always dressed well and wore perfume, makeup, and big golden hoop earrings. She usually wore a sweater with slacks under her white coat with the Physical Therapy patch on the left shoulder. Athena Pinzetti was beautiful, so beautiful that a sculptor could have chiseled her out of marble. Her thick, black hair was styled in a fashionable contour cut, with the back shorter than the sides. She had an olive complexion and thick, lush lips. She also had a round scar below her high left cheekbone. It was not a birthmark, but a small area on the surface of her skin that stood out, so unusual in color and form that people stared at it.

She stretched Kitten’s left arm and leg gently, and she promised never to hurt her. She called her Sugar and treated her with the greatest respect. Karen thought she was almost as wonderful as Miss Kimiko. However, as nice as Mrs. Pinzetti was, she did not have Miss Kimiko’s happy spirit. Her sullen, resentful irritability came and went. As time passed, she developed a dry cough and began clearing her throat constantly. Karen wondered if the smog were bothering her. One wrong word or a frown set off her temper. Her voice became whiny and demanding, and as she became more negative her constant use of the phrase, “Please come this way with me,” became a snarl.

This Able Team Interview, Part 2: Why I Founded Whispers of Hope

This is my second post about my interview with This Able Team. The transcript follows and you can read it on their Instagram, too. Just click here. Be sure to read their other posts, too, especially with Dr. Sean P. Dineen.

The photo is of me as a little girl with my dance teacher, the great Al Gilbert, who taught me to dance when the doctors said I would never walk.

Here is the transcript:

“I started Whispers of Hope back in 1989. I started it because I wanted to give myself to other people, to tell them that they’re not alone, that they can do whatever it is that they desire and what they want with their lives. I could be a voice to help them get through it. I speak professionally and I give my time without any charges to people who need it. That’s what I’ve done. Actually, I started advocating when I was a small child in grammar school. I had a girl friend who had cerebral palsy as well, but it was far worse than mine, and she was quadriplegic and had a speech impairment, she couldn’t do anything for herself. I used to help her in all ways, I used to feed her, we used to do homework together, we used to do everything together.

It was a beautiful interaction, it went through elementary school, junior high, and high school. When we graduated high school, somehow we just hooked up at the same junior college, Santa Monica College. We just kept our relationship from then on and it just built. We were there for each other. I don’t remember a time when there were many people in the schools who would do what my girl friend and I did, help each other be there for each other instead of bullying and hurting each other. We were there for each other and it made sense. It was almost like a family outside of a family. We were helping each other and empowering each other. When we had our appointments with the doctors, we would empower each other there. We would just work and give each other words of hope and encouragement, always.”

The Healing Horse, Ch. 19, Scene 10: Maneki Neko

image of ceramic maneki neko In this scene, little Kitten learns to tie her shoelaces, which is a challenge for many people, but remember that she has to do it with only one hand.

(Image by Searobin, CC BY-SA 3.0, via Wikimedia Commons)

Scene 10: Maneki Neko

A few weeks later, Miss Kimiko taught her to tie her own shoes. Mama had tried for years to teach her, but she had not had the right techniques and tools to help Kitten master this task.

“Hi Maneki Neko,” Miss Kimiko said to welcome Kitten. Maneki Neko meant lucky cat in Japanese. When Miss Kimiko spoke those words, Karen’s heart always lit up.

“Hi, Miss Kimiko,” Karen replied with her biggest smile. Miss Kimiko allowed Kitten to call her by her first name because there was a warm bond between them. Karen would always treat her with dignity and respect, just as she treated Karen.

“I am so glad to see you, today, Kitten. You are looking chipper, as always!”

“That’s because I’m here to see you, today!” Karen replied. “Am I still going to learn how to tie my shoes?”

“Ah, yes, you sure are. You are going to be the best shoelace tier in the greater L.A. area,” she kidded.

“What are we waiting for?” Karen asked in an imitation of Mr. Hinton’s voice. Miss Kimiko knew Mr. Hinton, and they both laughed.

Quietly settling Karen into a chair at the table, Miss Kimiko put a square of plywood in front of her. It had a leather shoe stapled to it, so that Kitten could practice tying her shoelaces without bending over to the floor.

“You take the two ends of the shoe laces, fold them over and under twice until nice and tight. Then you make one rabbit ear…”

Karen listened and watched carefully. After several tries, she mastered the skill of tying her shoelaces, and so Miss Kimiko taught her many of the basic skills of independent living.

The Healing Horse, Ch. 19, Scene 9: Miss Kimiko and Making a Stronger Left Hand

image of occupational therapy tools

This scene introduces a positive character, who counterbalances the twisted Mrs. Schmidt that we just met. Occupational therapists use all sorts of creative ways to help people of all ages improve their lives. For more about what they do, click here. (Image of some occupational therapy tools by Ashashyou, CC BY-SA 3.0, via Wikimedia Commons)

Scene 9: Miss Kimiko and Making a Stronger Left Hand

In contrast to Mondays, Thursday mornings could not come fast enough for Kitten. She looked forward to her weekly session with Miss Kimiko, the occupational therapist. It was like going to playtime with Tammy. Unlike the gloomy PT room, the occupational therapy room was filled with light that came through its spotless windows. The kitchenette with its chairs and table was spotless. The toys that helped her build dexterity were always clean. The floor was polished. The room had a feeling of quiet peacefulness that contrasted happily with the gloom and sullenness of the physical therapy room.

Miss Kimiko, the occupational therapist, wore her black, shoulder length hair in a stylish flip and outlined her brown eyes with medium black eyeliner that made them look bigger. She stood less than five feet tall and had a medium build. Unlike Mrs. Schmidt, she wore a neatly pressed cotton uniform. Even more unlike Mrs. Schmidt, she always smiled broadly and welcomed Kitten to each of their sessions. At every session, Karen learned something new and felt inspired to learn more.

One week, Miss Kimiko gave Karen two plastic squeeze bottles. They were connected by a flexible tube that went through their lids. The one that Miss Kimiko put into her left hand was full of water and heavy. The one for her right hand was empty and light. When Kitten automatically tried to trade the bottles, so that her strong right hand would hold the heavy one, Miss Kimiko gently stopped her by holding her wrists.

“Okay, Kitten, today we will play with these bottles. This will make your left hand stronger and help you learn to use both hands together. Okay? Does that sound like fun to you? You have a habit of using your right hand for everything, but today we want your left hand do the work. We will make it a strong hand, too. Okay? You can pretend you are squeezing chocolate icing onto a cake. That will make it lots of fun. Okay?”

Karen smiled and agreed. In a flash, she realized what Miss Kimiko meant about relying on her right hand. This was a turning point for her. Even though she knew that her left hand would never become as strong as her right, she was inspired to use it, and it did get stronger.

Did You See Me on Humans with Disabilities?

I was recently interviewed by This Able Team, and I want to tell you about it. The team is a group of people with the motto Fostering a disability community one story at a time.

Here is a transcription of their first post about me. You can jump right to it on Instagram by following this link.

Please let me know what you think! And be sure to check out the stories about my friend Dr. Sean Dineen.

Post 1:

“After the DPT shot, I went into a coma as an infant. It left me having left-side hemiplegia cerebral palsy, which is being paralyzed on one side. My right hand functioned normally, but there was very little that I could do with my left. My right leg was also normal, but it took several years of dance training before I was able to walk on my left leg without a brace. On top of that, several years later, my mother found that I had dyslexia. That explained why I could learn when given information orally, but we found that I got all mixed up when I had to do the written word.

I’ve faced a lot of challenges as a person with a disability. Despite having cerebral palsy and a learning disability of dyslexia, I have repeatedly done things that ‘normal people’ thought were impossible for anyone with a disability to do. I express my determination in many ways to make that possible for myself and to make the best life for myself. I became fearless and courageous, turning each and every experience into a positive affirmation and solution. Nothing was going to stop me from doing and adapting and being like ‘normal people’ in this world.

I found a seed deep inside of me, that said I wasn’t going to be defined by anybody, and that I was going to live my life just like everybody else in the world. I wasn’t going to sit in front of the TV and watch Popeye the Sailor Man. I wasn’t going to let anyone tell me that I was dumb, or stupid, or that I couldn’t learn, because that’s what they were doing. I had to prove to myself that I could take on the challenge and overcome every single obstacle in my path. And that’s exactly what I did. I tuned everything out around me, and every person who told me that I couldn’t. I came up with my own mantra: ‘You tell me I can’t, and I’ll show you I can.’

I have always felt grateful for my disability. I could have been far worse off. Thus, I remember every day that this is just a mere inconvenience. I always believe that my disability is a reminder to be an instrument for good in the world and a shining light. It has become my source of good to help share my voice and experience with others.”